I am getting ready to board a flight to Burbank. My experience loving someone with Spina Bifida allows me to do something pretty cool this week. I get to give a patient perspective regarding neurogenic bladder to people who have the power to unleash some serious dollars for research. It's about the word that keeps any family struggling with a diagnosis going: HOPE. Wish me luck and say a little prayer, please. Sent from my iPhone
12 years ago
